EUROPEAN SICKLECELL FEDERATION COMPANY LIMITED BY GUARANTEE

The European Sickle Cell Federation (ESCF) is a Europe‑wide umbrella network of patient‑led organisations dedicated to people living with Sickle Cell Disease (SCD) and related conditions. Founded in 2020, the federation gives a single, united voice to patients, families, carers and national SCD groups, championing health equity, better services and an improved quality of life across the continent.

ESCF’s work centres on advocacy, public‑health campaigns and capacity‑building programmes. It organises high‑profile events such as the annual ESCF Summit – the 2024 edition will be held at the Crowne Plaza Hotel in Blanchardstown, Dublin – and provides training, awareness resources and a European Sickle Cell Registry. Membership is open to any European SCD organisation, and the federation also runs targeted initiatives on mental health, policy lobbying and collaborative research partnerships.

Through its guiding principles and a strong commitment to collaboration, ESCF brings together more than 70 000 individuals affected by SCD, fostering a cohesive community that can influence policy, raise public awareness and drive forward innovative treatments for this lifelong condition.