HHT IRELAND COMPANY LIMITED BY GUARANTEE

HHT Ireland Company Limited by Guarantee is a national charitable organisation dedicated to improving the lives of people living with Hereditary Haemorrhagic Telangiectasia (HHT). By combining awareness-raising, education and research, the charity works to ensure that individuals and families affected by this rare genetic disorder receive early diagnosis, effective treatment and a supportive community.

Through a range of initiatives - from public campaigns and specialist information sessions to peer-support groups and an online store - HHT Ireland provides practical resources and emotional backing. The organisation also champions advocacy, encouraging patients to share their stories, take part in events and contribute feedback on specialist clinics such as Dr Sol Marcos's HHT reference centre in Madrid. With the friendly mascot "Little Red" as its voice, HHT Ireland fosters connection, hope and lasting change for the HHT community across the island.