TUBEROUS SCLEROSIS COMPLEX IRELAND

Tuberous Sclerosis Complex Ireland (TSC Ireland) is a charitable organisation dedicated to supporting anyone affected by tuberous sclerosis complex across the island. By collating the latest research and clinical insights, the charity offers a wealth of information through webinars and an annual in-person conference, ensuring families and professionals have access to up-to-date expertise from both Irish and international specialists.

Beyond information, TSC Ireland builds a vibrant community for patients, families and caregivers. It maintains an active Facebook page and WhatsApp group, and organises regular social gatherings such as Family Fun Days and adult-focused events, fostering connection and shared experience among those living with TSC.

A core part of the charity's mission is raising public and health-service awareness of this rare condition. Through advocacy and outreach, TSC Ireland works to ensure that care standards align with international clinical guidelines, championing the best possible outcomes for all living with tuberous sclerosis complex.