NATIONAL ASSOCIATION FOR SPINA BIFIDA AND HYDROCEPHALUS IRELAND COMPANY LIMITED BY GUARANTEE

The National Association for Spina Bifida and Hydrocephalus Ireland (SBHI) is a charitable organisation dedicated to enriching the lives of anyone in Ireland living with spina bifida and/or hydrocephalus, as well as their families and wider support networks. By offering clear, up-to-date information, practical advice and a welcoming community, SBHI helps members navigate health, education and social services, while actively lobbying government to secure the best possible provisions.

Key services include a comprehensive learning hub with short courses and video resources, specialised respite breaks and family weekends, and a vibrant calendar of social events such as charity golf classics, marathons and seasonal gatherings. Through its membership programme, SBHI champions inclusivity and equal opportunity, ensuring that the voices of those affected are heard at the highest levels. The association serves people across the Republic, drawing on a network of volunteers, fundraising partners and dedicated staff to deliver its mission of a fulfilled, socially inclusive life for all.