22Q11 IRELAND SUPPORT GROUP COMPANY LIMITED BY GUARANTEE

22q11 Ireland Support Group Company Limited By Guarantee is a charitable organisation dedicated to providing lifelong support for individuals and families affected by 22q11.2 deletion syndrome. By offering a welcoming, empathetic community, the group helps members navigate the complex medical, educational and social challenges associated with the condition, while promoting a holistic care model that spans the whole lifespan.

The group's core services include practical resources such as the "Family Guide: Understanding Genetic and Clinical Diagnoses", specialist webinars on special-needs trusts, wills and guardianship, and regular events ranging from family gatherings to fundraising runs like the Dublin City Marathon and the Women's VHI Mini Marathon. It also provides awareness and advocacy, information and research links, and peer-to-peer support through initiatives such as the YEEP group and online video guides. 22q11 Ireland serves families across the Republic of Ireland, fostering connection, knowledge and confidence for those living with 22q11.2 deletion syndrome.