THE NEUROFIBROMATOSIS ASSOCIATION OF IRELAND COMPANY LIMITED BY GUARANTEE

The Neurofibromatosis Association of Ireland (NF Ireland) is a charitable organisation dedicated to supporting individuals and families affected by neurofibromatosis (NF) across the island. Acting as a clear, trusted voice for the NF community, the association provides a comprehensive suite of services-from a 24-hour helpline that offers immediate assistance to a wealth of literature and online resources that explain the condition, its genetic origins and practical care tips.

NF Ireland also drives awareness and education through a vibrant calendar of events, including the European NF Conference, the annual NF Meeting, and specialised campaigns such as NF1 Breast Cancer Awareness Month and Niamh's Marathon for Neurofibromatosis. The group amplifies patient stories via podcasts, short videos and children's books, and runs dedicated information hubs for families preparing for hospital stays. Fundraising initiatives and the celebration of "NF Heroes" help sustain these programmes, ensuring that patients, clinicians, teachers and the wider public receive accurate, up-to-date information and a supportive community.